If there is anyone reading my blog and are becoming deaf late in life, my advice is this. Do yourself a favor and find support groups around your area. If possible, seek a support group before becoming completely deaf. This will help tremendously as you enter and accept your new life. Ask a loved one to go with you to the meetings these support groups have. One such support group you may find if living in the USA is called: Division of Services For The Deaf and Hard of Hearing which is a State Agency. Perhaps there may be such a service in your area.
As I've stated earlier in my journal, becoming deaf is no easy feat by any means. I did not lose my hearing gradually. I lost my hearing suddenly over night with a two percent chance of living. There are many, many people who lose their hearing due to Meningitis.
Another piece of advice I have to share is, "Don't panic". There is life after deafness. It just takes a bit more creativity. Also, for communication, you should learn the art of signing in your native language. American Sign Language is not universal which means there is a sign language system for every language. If you aren't able to take sign language classes, then pick up a book that teaches sign language. You'd be doing yourself a hughe favor by breaking the communication gap with your newly learned sign language.
Sign language takes time to learn. Think of a baby learning to say their first words. Sign language is an on-going learning experience. Just as one's vocabulary may or may not be a big one, so to will your signing be. It's all up to you on how much you want to learn.
Last but not least, remember things could always be worse. Just think of those less fortunate such as the Blind/Deaf persons in our world. They've never seen or heard anything within this world. I hope this helps. Good luck and may GOD bless you.
This is a personal story about my becoming deaf late in life. I enjoy writing about my new experiences, challenges and struggles I face day to day. Some days are good, and some days not so good as the reality of being profoundly deaf sets in.
Monday, June 6, 2011
Sunday, June 5, 2011
Is The Secret Out?
I'm sitting here thinking, "Do I really want to share with the world how I may have become deaf?" Not even my spouse knows this secret I'm contemplating on telling. It's five o'clock in the morning, my spouse is sleeping peacefully while I'm keying on my keyboard and feeling the need to tell my dreadful secret. I know I'm not going to tell my spouse this secret that I've kept for four years because it may cause my spouse respect me less and maybe begin to feel sorry for me and of course no one likes rejection. My spouse may even become angry with me for not telling this secret sooner and for learning of this secret itself. Which leads me to wonder, what I would gain by telling such a secret. Perhaps I should leave things the way they are by not sharing my secret. My spouse hasn't read my blog yet and I certainly haven't pushed it on her. Yes. That's correct. My spouse and I are both female. If you've noticed in my blog I've kept even this a secret until now. I'm sharing this tid bit of information because I'm still contemplating on sharing my biggest secret with the world.
Rejection, guilt, shame, and deserving are words that come to my mind regarding my secret. Right now I'm comfortable with saying, "My hearing loss is GOD's Divine Intervention". Somehow that statement say's it all.
Rejection, guilt, shame, and deserving are words that come to my mind regarding my secret. Right now I'm comfortable with saying, "My hearing loss is GOD's Divine Intervention". Somehow that statement say's it all.
Saturday, June 4, 2011
Big Changes In My Social Life
My social life honestly speaking has suffered tremendously. People who were once my friends now tend to shy away from me because of the lack of communication. Even though I try to use pen and paper with them, I can see it's a bit of a burden for them to have to write everything down for me if they intend on talking with me. It saddens me to not be able to hang out with my hearing friends who don't know sign language. Truth is, at first I didn't know Sign Language either so pen and paper was necessary. I've always hoped in the back of my mind that my hearing friends would support me a little by learning some Sign Language on their own. Why just today I was invited to a BBQ by one of my hearing friends, but unfortunately I couldn't attend because my spouse has to work and with out my spouse to interpret for me, what's the point in going.
Then there's the deaf community. I've tried to go to the different events such as, "Silent Dinner Night" where deaf people meet and greet one another and to no avail, my pen and paper routine seemed to be a small burden even for these people. Sometimes just by sheer chance, I would meet a person who's Hard of Hearing. I could talk to them in a very loud voice and they didn't seem to mind writing to me. So, I was able to find some friends after all.
During a Silent Dinner event, I would watch other people as they signed to one another. Oh how I wished I could sign also and join in on conversations that were being held among the deaf. I could see people shrugging their shoulders, nodding their heads, and laughing as they conversed in Sign Language. I would become amazed at how well the deaf communicated with one another. Sign Language at that moment became an art. An art I would love to learn.
Just as hearing people pronounce words differently, there is also a significant difference in the way each person signs as well. Some people sign slower than others and I noticed the amount of patience people had while taking turns signing to one another. This was the beginning of my seeing into a whole different culture which I never knew existed until now. People carried on and the use of sign language I could see was their "first" language, whereas with me, signing is my second language. That big difference shows who was brought up with sign language vs. who was not brought up learning sign language. Deaf culture is very interesting. Now if only I could embrace this new culture as being apart of it.
Then there's the deaf community. I've tried to go to the different events such as, "Silent Dinner Night" where deaf people meet and greet one another and to no avail, my pen and paper routine seemed to be a small burden even for these people. Sometimes just by sheer chance, I would meet a person who's Hard of Hearing. I could talk to them in a very loud voice and they didn't seem to mind writing to me. So, I was able to find some friends after all.
During a Silent Dinner event, I would watch other people as they signed to one another. Oh how I wished I could sign also and join in on conversations that were being held among the deaf. I could see people shrugging their shoulders, nodding their heads, and laughing as they conversed in Sign Language. I would become amazed at how well the deaf communicated with one another. Sign Language at that moment became an art. An art I would love to learn.
Just as hearing people pronounce words differently, there is also a significant difference in the way each person signs as well. Some people sign slower than others and I noticed the amount of patience people had while taking turns signing to one another. This was the beginning of my seeing into a whole different culture which I never knew existed until now. People carried on and the use of sign language I could see was their "first" language, whereas with me, signing is my second language. That big difference shows who was brought up with sign language vs. who was not brought up learning sign language. Deaf culture is very interesting. Now if only I could embrace this new culture as being apart of it.
Friday, June 3, 2011
The Ciaos Before Becoming Deaf
Divine intervention is what I think about having become deaf late in life. I try to keep positive about being deaf, however none the less, it is still very hard for me. The biggest challenge of being deaf is communication and the realization that I will never in this life time hear anything again. I still have my doubts about my life after having become deaf. What will I do. What can I do. Maybe if I start with what can I do, I will become more hopeful. One thing I can do is learn and apply myself to what ever my interest are. I know that one of my interest is in Computer Programming. Another interest I have is writing in my new online journal. Writing helps keep my mind open to new ideas and new thoughts about how I will achieve my goals in life. Yes. I still have goals and would very much like to see myself in a positive light five years from now.
My life before I became deaf was a life of a having a bit of ciaos. Not only was I working as an Electrician but I also liked to venture out and occupy my extra time with doing drugs. My drug of choice was crack cocaine. I had been doing drugs off and on for fourteen years having started in my twenties. I guess you could say I was one of the lucky ones because my habit was such that I would stop using when my spouse would slowly find out. This went on for seventeen years but by the grace of GOD, I never became a hard core drug user. Drug users often though I was a Cop because I still had a clean and refreshed look about me. One minute I'm on the drug my spouse would find out then I would quit again. Without going into the gory details of my drug use, I can tell you I've been sober now for four years and I'm never going back to using that dangerous and deadly drug again. And if there are any persons reading this that has an addiction please see: http://www.powerfuladdictions.com and get help.
You see, with my hearing lose, the drug world is no place to be if you're disabled in any way. Why, because those people could care less and will definitely take advantage of you in ANY way they can. People on drugs are ruthless especially the hard-core drug users. And they are willing to do anything to get their next hit. I know because I was once a drug user myself. This is why I call my hearing loss divine intervention. Here's my secret as to why I may have become deaf.
Honestly in thinking, I'm not ready to reveal to the world about how I may have become deaf. Not yet.
Besides, there's plenty more for me to write about. I hope you'll keep reading. Enjoy.
My life before I became deaf was a life of a having a bit of ciaos. Not only was I working as an Electrician but I also liked to venture out and occupy my extra time with doing drugs. My drug of choice was crack cocaine. I had been doing drugs off and on for fourteen years having started in my twenties. I guess you could say I was one of the lucky ones because my habit was such that I would stop using when my spouse would slowly find out. This went on for seventeen years but by the grace of GOD, I never became a hard core drug user. Drug users often though I was a Cop because I still had a clean and refreshed look about me. One minute I'm on the drug my spouse would find out then I would quit again. Without going into the gory details of my drug use, I can tell you I've been sober now for four years and I'm never going back to using that dangerous and deadly drug again. And if there are any persons reading this that has an addiction please see: http://www.powerfuladdictions.com and get help.
You see, with my hearing lose, the drug world is no place to be if you're disabled in any way. Why, because those people could care less and will definitely take advantage of you in ANY way they can. People on drugs are ruthless especially the hard-core drug users. And they are willing to do anything to get their next hit. I know because I was once a drug user myself. This is why I call my hearing loss divine intervention. Here's my secret as to why I may have become deaf.
Honestly in thinking, I'm not ready to reveal to the world about how I may have become deaf. Not yet.
Besides, there's plenty more for me to write about. I hope you'll keep reading. Enjoy.
Thursday, June 2, 2011
A Tid Bit Of My ChildHood
You're probably wondering what about my family. I grew up as an only child only to find out forty years later I have a half-sister that my father never told me about. My father and I have a strained relationship. I've always said to myself, "That man has too much pride for me," So, we don't speak. It appears he has no sympathy for my becoming deaf. My mother and I email each other from time to time. My relationship with my mother is much better than with my father. My half-sister found me through Facebook. How cool is that. Smiles.
Back when I was a child, my father use to take out his days frustrations on me. I could always sense his mood even before he came home. He was in the business of running a semi successful restaurant lounge called the Whole Person Restaurant. My father would often beat on me for no reason or he'd find any reason to to be mean or angry with me. He was the type of father who only did things for me in order to put himself in the lime-light for his then girl-friend(s) at the time. Every one on the outside of our relationship saw only the good portions of how well my father treated me. I was the only one who knew the truth. He made it such that if I said anything, people would look at me as through I were crazy. He once gave me a bedroom with all four walls painted with Charley Brown characters. "How lovely", my fathers friends thought. My room had a white canapé bed with ruffles on the canapé. I was probably the only kid on the block that had a huge television in their room not to mention every toy I could possible want. Sure, my fathers friends said I was spoiled. All my childhood friends were envious of me. But if I were really spoiled, then how come behind closed doors all I would see is my fathers anger. I didn't understand. Not to mention he always had a glass of something in his hand and it sure wasn't water.
In looking back, I hated my father. He is a man with too much pride even till this very day. When I could hear he was the type of parent that I found myself always reaching out to. It seemed no matter what the topic of conversation was, he'd always manage to turn the conversation into himself. As if he were so important. My father was the type of man who would blame me for getting hurt as children do from time to time. He would even hit me for hurting myself. I could not turn to him for anything and I hid everything from him especially my thoughts and feelings. You could say my father squashed my young spirit.
Writing in this journal I am able to reflect more specifically on my childhood. I've held my feelings toward my father in for so long that it's causing me to have intense dreams about lashing out at my father for beating me all those times for little things like loosing an earing while at play. Another reason my dad would be angry with me is because he had so many girlfriends that I would get confused and start accidentally using their wrong names. I didn't have a mother to turn to and it seems now she (my mother) was afraid to come around. Sometimes my mother would make a plan to visit me only to not show at the last minute. Then my father would say in an angry voice, "You know your mom." I always wondered what he meant by that and I often wondered why he and not my mother was raising me.
One day I simply asked my mom, "Was dad nice to you?" And her answer was always, "Well...." and she'd never finish the sentence and change the subject. Then I'd ask a second question, "Mom why can't I live with you because dad is mean to me?' My mom would just turn and look at me and say, "Because your daddy can support you better than I can" and she'd leave it at that. I'd often cry when the visit with my mom would come to an end. I tried desperately to tell her that my dad was mean to me. Mom listened, but never responded.
My mom and I are much more close these days (now that I'm older and independent of my father). I've asked that same question most recently of, "Was my father nice to you?" Finally she answered, "That man was very mean to me." Then I'd ask my mother, "Did dad ever hit you?" And she'd reply, "Yes. and once was enough." Finally, a break through had come. Now I knew for certain that my father hit on my mom also. It's no wonder she didn't come around as often as she should have. And when I described my childhood to my mom, she didn't act surprised in the least bit. She also didn't have much to say either. I realize now I was my dad's pawn in order to get my mom to come around.
Back when I was a child, my father use to take out his days frustrations on me. I could always sense his mood even before he came home. He was in the business of running a semi successful restaurant lounge called the Whole Person Restaurant. My father would often beat on me for no reason or he'd find any reason to to be mean or angry with me. He was the type of father who only did things for me in order to put himself in the lime-light for his then girl-friend(s) at the time. Every one on the outside of our relationship saw only the good portions of how well my father treated me. I was the only one who knew the truth. He made it such that if I said anything, people would look at me as through I were crazy. He once gave me a bedroom with all four walls painted with Charley Brown characters. "How lovely", my fathers friends thought. My room had a white canapé bed with ruffles on the canapé. I was probably the only kid on the block that had a huge television in their room not to mention every toy I could possible want. Sure, my fathers friends said I was spoiled. All my childhood friends were envious of me. But if I were really spoiled, then how come behind closed doors all I would see is my fathers anger. I didn't understand. Not to mention he always had a glass of something in his hand and it sure wasn't water.
In looking back, I hated my father. He is a man with too much pride even till this very day. When I could hear he was the type of parent that I found myself always reaching out to. It seemed no matter what the topic of conversation was, he'd always manage to turn the conversation into himself. As if he were so important. My father was the type of man who would blame me for getting hurt as children do from time to time. He would even hit me for hurting myself. I could not turn to him for anything and I hid everything from him especially my thoughts and feelings. You could say my father squashed my young spirit.
Writing in this journal I am able to reflect more specifically on my childhood. I've held my feelings toward my father in for so long that it's causing me to have intense dreams about lashing out at my father for beating me all those times for little things like loosing an earing while at play. Another reason my dad would be angry with me is because he had so many girlfriends that I would get confused and start accidentally using their wrong names. I didn't have a mother to turn to and it seems now she (my mother) was afraid to come around. Sometimes my mother would make a plan to visit me only to not show at the last minute. Then my father would say in an angry voice, "You know your mom." I always wondered what he meant by that and I often wondered why he and not my mother was raising me.
One day I simply asked my mom, "Was dad nice to you?" And her answer was always, "Well...." and she'd never finish the sentence and change the subject. Then I'd ask a second question, "Mom why can't I live with you because dad is mean to me?' My mom would just turn and look at me and say, "Because your daddy can support you better than I can" and she'd leave it at that. I'd often cry when the visit with my mom would come to an end. I tried desperately to tell her that my dad was mean to me. Mom listened, but never responded.
My mom and I are much more close these days (now that I'm older and independent of my father). I've asked that same question most recently of, "Was my father nice to you?" Finally she answered, "That man was very mean to me." Then I'd ask my mother, "Did dad ever hit you?" And she'd reply, "Yes. and once was enough." Finally, a break through had come. Now I knew for certain that my father hit on my mom also. It's no wonder she didn't come around as often as she should have. And when I described my childhood to my mom, she didn't act surprised in the least bit. She also didn't have much to say either. I realize now I was my dad's pawn in order to get my mom to come around.
Wednesday, June 1, 2011
At First I Was Angry
In thinking back when I first became deaf, deep down inside I became angry as hell. I was angry at the world. "Why did this have to happen to me?", I'd often asked myself. Then I began to realize not only couldn't I hear the outside world, but I also had to adjust to not hearing my own voice as I spoke. That meant my speaking voice became a voice which was a little louder than usual at first. I was told in writing since I did not know American Sign Language at that time.
Communication soon became a challenge for me and a new strain on my relationship with my spouse. I have a ton of writing paper with conversations I had back then with my spouse. In order for our communication to become clear again, my spouse took in college an ASL class and even obtained an Associates Degree while doing so. How's that for love? Smiles. It's because of my spouse that I am becoming more fluent in Sign Language. Of course there are other sources that I am learning from as well. But my main source is my spouse of twenty-one years. Yes. My spouse is the same saucy red-head I mentioned in my previous writings. I honestly don't know what would have become of my life had it not been for my spouse finding me support groups early on. And who say's true love doesn't exist?
I was even more angry at first because I couldn't walk. You see, for those of you that don't know, a human body get's it's balance from their inner ears called the Cochlear. When I was sick with Meningitis my inner ears (both of them) suffered severe damage. At first I honestly thought my hearing loss was only temporary, however my audiogram proved unlikely. Oh, I cried and I cried. My thoughts about the rest of my life ran wild. How was I ever going to survive. What job would hire me. I couldn't go back to my old career which was that of an Electrician.
For those of you that are reading this, just imagine if you will, being deaf for a day. Think about how that would impact your life. Being deaf late in life really takes courage which is what I'm finding with each passing day. The doctors don't know how I came to have Meningitis and apparently it's a deadly bacteria. Well, I've been doing some thinking about how I may have come into contact with the deadly bacteria. It has to do with my life before I became sick. This part I'm about to write about is truly a "secret". So stay tunned as I muster up the courage to do a "tell all" on my life. Let's just say my loosing my hearing is definitely due to GOD's divine intervention.
Communication soon became a challenge for me and a new strain on my relationship with my spouse. I have a ton of writing paper with conversations I had back then with my spouse. In order for our communication to become clear again, my spouse took in college an ASL class and even obtained an Associates Degree while doing so. How's that for love? Smiles. It's because of my spouse that I am becoming more fluent in Sign Language. Of course there are other sources that I am learning from as well. But my main source is my spouse of twenty-one years. Yes. My spouse is the same saucy red-head I mentioned in my previous writings. I honestly don't know what would have become of my life had it not been for my spouse finding me support groups early on. And who say's true love doesn't exist?
I was even more angry at first because I couldn't walk. You see, for those of you that don't know, a human body get's it's balance from their inner ears called the Cochlear. When I was sick with Meningitis my inner ears (both of them) suffered severe damage. At first I honestly thought my hearing loss was only temporary, however my audiogram proved unlikely. Oh, I cried and I cried. My thoughts about the rest of my life ran wild. How was I ever going to survive. What job would hire me. I couldn't go back to my old career which was that of an Electrician.
For those of you that are reading this, just imagine if you will, being deaf for a day. Think about how that would impact your life. Being deaf late in life really takes courage which is what I'm finding with each passing day. The doctors don't know how I came to have Meningitis and apparently it's a deadly bacteria. Well, I've been doing some thinking about how I may have come into contact with the deadly bacteria. It has to do with my life before I became sick. This part I'm about to write about is truly a "secret". So stay tunned as I muster up the courage to do a "tell all" on my life. Let's just say my loosing my hearing is definitely due to GOD's divine intervention.
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